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Rituximab Options
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Valerie-R
#61 Posted : Tuesday, October 25, 2011 1:34:01 PM Quote
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Joined: 5/22/2010
Posts: 51
Hi Poppy,Ohhh dear what a mess you are in!!!!I myself are waiting to have "Rituximab".Reading all the others who are on it (who have been) sounds very scarie.Now i dread it!!Hope you will keep everyone posted in the future to let us no how you get on.Good Luck Valerie-R
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LynW
#62 Posted : Thursday, October 27, 2011 2:42:30 AM Quote
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Location: Thornton Cleveleys
Hi Beth and Rose

Well done ladies with your infusions! ThumpUp Guess it's now the waiting period for you Beth to see if the desired result has been met. Hope the outcome is promising. Good luck with the second infusion Rose.

My first Rituximab infusion is 3rd November so will be following your progress eagerly Smile

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

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bethbrown
#63 Posted : Tuesday, January 10, 2012 7:46:24 AM Quote
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update

well - since both infusions (oct 11) I am disappointed to report that for me the ritux has not yetSad kicked in. I had to ring to request some steroid help just before Christmas, as I was having swollen joints daily (different joints - moving from wrist to finger, then knee, then other hand etc etc - you get the picture ) I had my appointment with the nurse yesterday and presented with a very swollen (about to burst it felt like - left index finger- today it’s my right little finger and foot as well!) we have decided to keep on with the steroids at 5mg daily, together with a depo jab, in the hope that another couple of weeks may see the infusion working. B cell blood tests at 6 weeks post infusions showed that chemically the drug had done it’s job so I just have to hope it WILL kick in. I am still hopeful it may begin to workRollEyes
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sheila_G
#64 Posted : Tuesday, January 10, 2012 9:24:59 AM Quote
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Hi Beth

Sorry it is taking so long to kick in but probably this is the usual thing. I don't know much about it myself but I hope you don't have to wait much longer

Sheila x
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poppy
#65 Posted : Wednesday, January 11, 2012 8:40:13 PM Quote
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Hi,

Sorry havent been on for a while.Im not having anymore RTX because of the side effects,although i think it took some of the swelling down after about 4 months or so.Im going on the new one soon beginning with T cant remember how to spell it!!

Im a bit behind with the news on here

Poppy xxx
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Rose-B
#66 Posted : Wednesday, January 11, 2012 10:00:08 PM Quote
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Location: Somerset

Hello Poppy sorry that you had to stop the RTX, what side effects were you affected with.


Hello Beth, I had my RTX infusions just 2 weeks behind you. I also am not seeing any
improvements. The same as you one day my hands, fingers, then elbows, feet moves all
over the place. I see my RA nurse on Feb 3rd, so I will wait to see what they want to do.
It is so upsetting though isn't, I really hoped that this would be the drug for me, however
I am told they say up to 16 weeks and I am only at week 10 - so like you fingers crossed
that it WILL work.

Lynn - how you doing.


x
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poppy
#67 Posted : Thursday, January 12, 2012 9:21:47 AM Quote
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Hi

My consultant told me it could take up to 6 months to work.The side effects started when i had the drip and lasted for about 5 days.I had bad headaches,blotchy skin.having hot flushes and feeling light headed.I just felt dreadful and they only gave me half the amount the second time.But this isnt the first one that im allergic too.But the woman who was having hers done the same time as me swore by it.

poppyxxx
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